It has been a long road of doctors and tests stating 5 years ago as my physical condition deteriorated until I finally had to leave my post as Library Director and go on Social Security Disability. After all the doctors (20 in all) I finally found one who diagnosed me with MSA. What small letters for such a big disorder. To go from a successful Library Director to someone barely able to walk or talk. I took to the Internet and discovered the Shy-Drager Syndrome Yahoo Group where I have learned all I know about this, and other, Parkinsoniasm Plus disorders.
Sunday, August 16, 2009
Learning I had this disorder
This blog will try to explain what it is like living with several severe disabilities for more than 30 years, and with two fatal ones - kidney disease from birth, and MSA for the past 9 years.
It has been a long road of doctors and tests stating 5 years ago as my physical condition deteriorated until I finally had to leave my post as Library Director and go on Social Security Disability. After all the doctors (20 in all) I finally found one who diagnosed me with MSA. What small letters for such a big disorder. To go from a successful Library Director to someone barely able to walk or talk. I took to the Internet and discovered the Shy-Drager Syndrome Yahoo Group where I have learned all I know about this, and other, Parkinsoniasm Plus disorders.
It has been a long road of doctors and tests stating 5 years ago as my physical condition deteriorated until I finally had to leave my post as Library Director and go on Social Security Disability. After all the doctors (20 in all) I finally found one who diagnosed me with MSA. What small letters for such a big disorder. To go from a successful Library Director to someone barely able to walk or talk. I took to the Internet and discovered the Shy-Drager Syndrome Yahoo Group where I have learned all I know about this, and other, Parkinsoniasm Plus disorders.
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I just wanted to say God Bless You! My husband, Ralph also had MSA/Parkinson, which was confirmed after his passing in 2004. I am still on MSA list, this is really important to me. You are a very wonderful lady and I will follow your blog. Thanks! Shirley
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